Mental Illness and Higher Education

Recently, Kristen and Lisa discussed a whole lot about mental illness. They talked being public about it, as well as social media and celebrity status related to mental illness. Anyway, we hope you’ll take a listen and find out more about their discussion about mental illness and higher education.

I feel like Kristen has always been a part of my life, and my daily routine. But I think our friendship goes back at least four – five years, springing from 140 characters of authenticity at a time. I was excited and honoured to have the chance to chat with Kristen about our friendship and the interesting intersections of mental health and higher education in our relationship. So much of our friendship has been a lesson in vulnerability, authenticity and support. We have shared our challenges and success in navigating the complicated external world through the lens of our even more complex internal world. I am a strong advocate for wanting to both publicly talk about and create a narrative around mental health that is just as ‘normal’ as talking about daily life with a good friend. And I think that’s exactly what we’ve done here.

Kristen and Lisa talk mental illness in higher education

 

Transcript of podcast – apologies, Kristen is new to podcasting and didn’t do a great job picking up Lisa’s microphone, so this might be helpful.

Show notes

In our conversation, we talk about a lot of stuff. We hope some of the following resources will help translate the Kristen-Lisa speak:

Using Crazy Language – A Lesson

Joe and Kristen have been friends for several years, and met online. While they talk frequently about a number of philosophical theories, one of the things that Joe has learned from Kristen is about the nature of using crazy language – or the language of mental illness. 

Kristen stands outside next to Joe - who talks about using crazy language in this post

If there is anything that sticks out amongst the number of lessons that my friendship with Kristen has taught me over the years, it is the aspect of calling things “crazy” in daily conversations.

Nod with me if you’ve used any of these phrases:

“I’m just so crazy right now with e-mails.”
“Did you see the line at the coffee shop? Craziness.”
“I can’t believe I got accepted to present at a national conference, crazy right?”
“You know what’s crazy? The results of the election. That’s crazy.”

Where does crazy language come from?

The origin of the word “crazy” dates back to the 1500s. At that time, people used crazy to define someone that was diseased or sickly. It was also used to describe someone that was “full of cracks or flaws” in those times (according to the Online Etymology Dictionary). Does that sound like a word you’d use to try and describe something in a positive light?

You see, the meaning of the word crazy ties directly to how we interpret mental health. If we are so comfortable labeling a line of people, a full inbox, or a meeting agenda as “crazy,” how much are we marginalizing those who suffer and live with mental illness? Those who, years ago and even now, may be described as “full of cracks or flaws” or “diseased?”

Using crazy language marginalizes mental illness

As a result, I’ve stopped using the word “crazy” in conversation, or at least recognize when I use it. I know folks who struggle, fight and survive their battles with mental illness on a daily basis; there is nothing crazy about them. What seems absurd to me is the general disregard to mental health and wellness in our language. While we are seemingly heightening our awareness around language, we still consider mental health and wellness an “other” topic and not a main topic of discussion.

Unfortunately, it seems that mental health and wellness is following the path of diversity. I see this at conferences, human resource orientations, graduate school, college and even high school. During undergrad and professional involvement as a new member of higher education, diversity was the must-have training for every department, experience or conference. Whatever it was, everything seemed to use the word “diversity.” As you can see in many aspects of today’s world, the success of that is questionable depending on how you look at it.

I fear the same for mental health, illness and wellness. I fear society will say we’ve talked about it or researched it – but will we ever act on it? Will we ever change as a result of it?

The impact of using crazy language

I want to return to how I have changed because of my friendship with Kristen. It’s not just about me becoming aware of the word “crazy” and the meaning and impact it can have when used. It’s the fact that she took the time to educate me on the impact of it, both in terms of her and society, without being on a soap box, without giving a lecture, without shaming and without any sense of superiority. She never had an attitude of “I’ve lived it, so I’m the expert.” She did it by being herself.

Next time you start to describe something as “crazy,” try associating it with a friend who has mental illness. How does that sound? Something tells me that saying, “My inbox is so Kristen right now” might permanently shift your perspective and give you a moment of pause and reflection that many of us need daily.

Editor’s note: For more suggestions on how to change every “crazy talk,” make sure to check out our Toolkit for additional resources!

About the Author

Joe Ginese does some amazing stuff with new student orientation at CUNY-Borough of Manhattan Community College, but what he does even better is inspire people. Seriously – ask around; we bet you’ll find a higher ed professional here and there who has learned something from Joe. He thinks big, supports his friends, and he loves his family.

Friendship and Mental Illness – An Introduction

In this #suedle – Sue’s trademark comic illustration – Sue describes what it felt like to meet Kristen for the first time and why their friendship and mental illness is so important to her and to the work they do.

Sue and Kristen meet for the first time "IRL" - transcript available further down the page for complete text of images Sue recognizes signs of mental illness in Kristen over the coming days - complete text in transcript further down page Despite being a little scared of what it might bring, Sue decides to stay and become friends with Kristen - full transcript of images available further down the page Friendship and mental illness are important pieces of how a project and a movement was born - full transcript of images available further down the page The Committed Project is born from this friendship and mental illness shared between Kristen and Sue - full transcript available further down the page

Comic Transcript

Kristen and Sue meet for the first time ‘IRL’

Frame 1

{Image description: Cartoon of Sue typing on a computer. The word bubble coming from the computer says “Sure, we have room.”}

The first time I met Kristen’IRL’ was when she offered to let me crash with her at a conference.

Frame 2

{Image description: Close-up of Sue peering at her computer with just eyes and nose visible}

What I knew of Kristen up until this point was based on reading her blog and connecting online.

Frame 3

{Image description: Sue is sitting in her desk chair, clenching the sides and shaking}

Still…I was nervous. Nervous for so many reasons. But mostly because PANIC.

Frame 4

{Image description: Sue standing with knees together, holding arms tight to her chest and shaking}

Kristen wrote a lot about dealing with depression, but I was not “out” about my panic. Would she understand this, too?

Frame 5

{Image description: Sue is in a double bed with Kristen turned to the side away from her sleeping. Sue is wide awake, holding the covers up over her mouth. A thought bubble floats above her in which she lays sideways on the floor holding her knees up to her chest with her eyes squeezed shut and shaking}

The first night, I barely slept.

Recognizing the signs

Frame 6

{Image description: Kristen and Sue sit side by side at a table. Kristen is on her laptop, and Sue is on her phone. The word bubbles above them say “Tweet tweet tweet.” “Tweet tweet!”}

Over the next few days, Kristen and I spent a ton of time hanging out at the conference with friends.

Frame 7

{Image description: Sue holds a magnifying glass and points as if to identify something}

It was around this time that I started to pick up on a few things…things that often go unnoticed.

Frame 8

{Image description: Close-up of Kristen’s eyes behind glasses. The irises are a solid black}

A glimpse of deadness in her eyes,

Frame 9

{Image description: Kristen is hunched over sleeping on a table}

Relentless exhaustion,

Frame 10

{Image description: Kristen stands with arms crossed and annoyed look on her face. A lightning bolt of irritation is above her head}

Sometimes a subtle irritability that was hard to describe,

Frame 11

{Image description: A small urn with “Kristen’s feelings” on it sits in a shadowed corner}

And the worst one of all – a numbness and a pain so incredibly not within her control, it was as if for a brief moment, all of her feelings – good and bad – were not within reach.

Deciding to stay

Frame 12

{Image description: Sue stands holding the door open and starting to leave the room}

I knew these signs, knew them well. A very shitty reflex in me wanted distance from these things immediately.

Frame 13

{Image description: Kristen stands holding a suitcase with the word “Depression” written on it. Two more suitcases are stacked next to her}

But the less shitty side of me was drawn to Kristen because of these things. I recognized the baggage…

Frame 14

{Image description: Close-up of Sue’s eyes behind glasses with lightning bolts in them}

A panic in the eyes,

Frame 15

{Image description: Sue has arms clenched around her and is shaking violently}

A subtle buzz of uncontrollable nerves,

Frame 16

{Image description: An urn sits in a shadowed corner with “Sue’s feelings” written on it}

Feelings bottled up and hidden.

Frame 17

{Image description: Sue stands next to Kristen, both holding suitcases. Sue’s suitcase has “Anxiety” written on it, and Kristen’s has “Depression” written on it}

I think these are things we both recognized in each other.

Friendship and mental illness

Frame 18

{Image description: Sue stands with arms behind her back, thinking and saying “Hmm.” Next to her, a thought bubble shows a clock, a paintbrush, hearts, a man with a baby and a house}

Hanging out and talking with Kristen made me think of my own future.

Frame 19

{Image description: Sue and Kristen sleep soundly in the double bed, their baggage is stacked on the floor next to the bed. A calendar is on the far right of the image, transitioning into the next frames. The pages showing the months of March and April fall from the calendar to indicate time passing, and May stays visible }

I distinctly remember being exhausted and happy at the end of that trip. I slept well the last night of that conference knowing the space was safe.

Frame 20

{Image description: A desktop computer with the screen visible. A “Hangouts” box is open in the bottom right corner with “KA: Hi!” written in it}

Kristen and I continued to talk over the following weeks until one day…I messaged her with an idea.

Frame 21

{Image description: Sue stands with finger on her lip, a lightbulb above her head is lit up}

An idea becomes a movement

Frame 22

{Image description: Sue is typing at her computer. A jagged line is drawn across the middle to indicate the distance between Sue and Kristen. Kristen is typing at her computer on the other side of the jagged line}

It was not a coincidence in my mind that the idea for The Committed Project was born in the following weeks.

Frame 23

{Image description: Sue stands with her back to the reader, pencil in hand and drawing a scribble}

I wanted to use my skills to bring awareness to something I had experience with…to talk about those things I noticed and knew.

Frame 24

{Image description: Sue and Kristen stand side by side with their arms around each other}

Kristen felt the same!

Frame 25

{No image}

Our friendship is more than a working relationship. It is built on an understanding of struggle, advocacy, and wanting higher ed to be better for all. I am grateful to have a friend who gets it.

{Signed “Sue #suedle”}

About the Author

Sue is one of the co-founders of The Committed Project and is our Director of Visual Translation – you can see why. By day, she serves as the Director of Student Affairs at the Hofstra Northwell School of Medicine. But some of her most important work is the stuff she makes – Sue is an artist, an advocate for creativity as well as mental illness, and she develops relationships with people that make them better for knowing her.

Mental Illness as a Higher Education Professional

As a both a friend and colleague of Kristen’s, Laura Pasquini took a few minutes to share in a podcast how important it is to be open about having mental illness as a higher education professional.

Transcript from Laura’s Podcast

At the 2015 ACPA Convention I was impressed how you take and share more about your personal experience in dealing with mental illness in your PechaKucha talk. I was inspired, Kristen, about the way you shared yourself and continue to #StompOutStigma for mental health awareness. Not only has your effort brought about advocacy for peers in higher education, it has also made others think broadly about the way we discuss issues of mental health for practitioners who work in the post-secondary environment.

Prior to this brief, but important, talk you had shared a little about yourself and your mental illness with myself and a few select few friends and peers in our shared personal learning network. Once this talk was recorded and uploaded to YouTube, it has become an even more impactful way to initiate the taboo conversation around issues of depression, suicide, and more. A number of our peers look to you, Kristen, for making this difficult topic more open and approachable –and I can see both the direct and indirect way your sharing about mental illness issues has impacted others in higher ed.

Kristen, I love how the Committed book and now The Committed Project has become a platform for open discussion. It’s amazing to see how you have transformed this online space into an educational resource and tool for awareness to help dismantle myths and misconceptions about mental illness. I’m not sure our relationship has changed all that much, personally; however, I know your ability for being REAL about this topic has let down a few barriers that our peers and colleagues can now feel open and okay about bringing these issues out of the dark. Thank you for this. Mental illness and issues shared by The Committed project provides a starting point for conversations on our campuses and among colleagues in a field of “helpers” who often don’t take care of themselves first. I am thankful for the community and conversations that you have instigated among peers and challenges you continue to push forward as we consider how to better support staff we work with. Conversations about mental illness does not occur enough – yet you frequently remind us it needs to, before it is too late. Thanks for doing that, Kristen. And thanks for thinking about us first.

About the Author

Laura Pasquini is pretty much the bomb. If it has something to do with technology and teaching, she is all over that. Kristen considers her a kindred soul when it comes to loving and being the person we are 24/7 – even when we’re online, or maybe especially when we’re online. She also co-hosts a couple awesome podcasts – BreakDrink and #3WeduWe heart her commitment to The Committed Project.

Helping My Friend Tear Down the Wall of Depression

What do you do when your friend experiences depression? How can you help? Kassie – one of Kristen’s oldest friends – writes about their friendship while experiencing Kristen’s depression.

Kristen standing next to Kassie - friends despite depression

It feels strange and somehow illicit to write about someone else’s depression. Like I’m wandering into territory that isn’t mine to share or discuss. Even when it’s someone I’ve known and loved for twenty years, it feels somehow invasive and presumptuous to write about. Even when that dear, dear friend has invited me to write about it. It still feels wrong.

Maybe it’s because mental illness is such a personal experience and such an individual experience and for so long such a stigmatized condition. If you have cancer we’d gather together and bake lasagnas and offer to clean your house and drive you to chemo and watch your kids. But if a friend has a mental illness, what do we do? Do we ignore it? Do we hide from it? Do we wait to reach out until you’re having a “better day” or you’re in a “better mood?” Are we hesitant to ask “how are you doing?” Would we hesitate if it was cancer? Nope.

Depression Can Create a Wall

It can be hard to feel close to a friend who struggles with depression. No matter how long you’ve known and loved that person, or how well you know them, or how many times you’ve sat at their kitchen table and shared a meal and a large glass of wine and talked and talked and poured your hearts out into each other’s ears, depression is a wall. Sometimes that wall is tall and strong and overwhelming, and you cannot get through or around that wall to find your friend on the other side.

Stone wall in front of flowers - Wall of Depression

Sometimes, though, the bricks in that wall have been knocked down a bit and you can see your friend on the other side, working to take the bricks down with their limited energy, struggling one by one, yanking them out, to try to reach their loved ones and to see themselves on the other side. And some days that wall is just a small garden edging that you step right over to stand face to face with your friend, and offer them the hug you know they desperately need, that you need too.

Helping to Tear Down the Wall

And that wall changes weekly, monthly, yearly, up and down again, sometimes thick and impenetrable, sometimes barely noticeable, just a small barrier like a red brick trim meandering around a flower bed.  But the wall is there. It’s always there. They are always facing it and measuring it and figuring out where they stand with it. And as a friend you have to work around it, always knowing your friend is there on the other side, using all of their energy to fight against it and just keep going some days.

So you push against those bricks too. You climb that wall, you help dig out that masonry with your fingertips to reach them on the other side, you don’t disappear, you stay and help them fight it however you can. You listen. You check in. You push when you think you should. Because this wall isn’t your friend’s choice, it’s your friend’s burden. And yours too, because you love them. Their sarcastic humor, and passion, their advocacy and bravery out in our sometimes dark, gnarly world, all of that is on the other side of that wall, always.

Depression Doesn’t Disappear

And you know if you haven’t talked in a few weeks, the wall is back and strong again. And you check in. You call. You push. You ask hard questions if you must. Even if your friend is married to a wonderful spouse/partner, they still need you to listen and hear them and give them a heads up if you are worried about them. And be there. Show up. Because they can’t fight that wall alone. And the fight, the effort, the struggle only strengthens your friendship and your admiration for them. So stick with it, fight it out, ask how you can help, and show up. Keep showing up. They deserve it, and so do you.

About the Author

Kassie Sands has been one of Kristen’s best friends since way back in the college days – for reference, that’s a long time. She works in the nonprofit world and Kristen suspects that some day she’ll be an author. Also, she’s pretty freaking amazing.

How Does It Look to Have Mental Illness?

Sometimes the best way to understand mental illness is to see how it affects just one person. During May, we will explore how it looks to have mental illness through the experience of Kristen, starting with her own discovery of her depression.

Kristen sitting at table with son sitting on table and husband sitting on other side - I have mental illness

When we started planning for the 2017 Mental Health Awareness Month on the blog, I knew I needed to dig a little deeper into my experiences with mental illness. So I went to my journals, looking for an idea of when I realized I might have mental illness. There were a number of mentions of being depressed or upset in my journals – as there likely are in the journal of most teenage girls. But every once in awhile, something peeked through that sounded like there was something more to it. If you can ignore the melodrama of a teenage girl, you can get the occasional glimpse…

…I’ve screwed up so much lately that I might as well screw up some more. I feel miserable. I feel like shit. I guess there’s a good reason for that, though. I feel a deep depression coming on. A deep and long depression. (7/28/92)

That is a journal entry from when I was 15. People often ask me when my depression started. I don’t remember for sure, to be honest, except that I spent a good portion of my teenage years feeling pretty similar to what I’ve described here. I think I hid it well – most of the time I felt like I didn’t have a choice – I had to go to class, I had to make straight As and do the school play and be captain of the swim team and play the piano and make it into the honor society and and and… It’s not that I didn’t enjoy those things – many of them I did enjoy. But I also never felt like it was an option to let myself sink.

I Might Have Mental Illness

When I got to college, I began to be able to explain these feelings a bit better in my journal – and to others. My sophomore year of college was particularly difficult at times.

All I feel like doing any more is sleeping. I don’t want to go to class, and what’s more, I don’t care that I don’t want to go. At this point, I feel like dropping out, to be perfectly honest. But every bone in my body is fighting for my life. I cannot let this overtake me. I have to maintain some control of my life. I just don’t feel like doing anything but sleeping and crying. I know I’m depressed. I just don’t know what to do about it. (10/21/96)

At that time, there were no ads on TV for various antidepressants with their ridiculously long list of side effects (I mean seriously, have you ever really listened to all the possible side effects? No wonder people are scared to take meds for their mental illness). I didn’t know that people like me – people in the midwest state of Kansas, people who did well at school, or people who had friends – could be depressed. I assumed that, well, I don’t know what I assumed – I just didn’t think it was an option for me.

Seeking a Diagnosis

The spring of my junior year of college, however, things really came to a head.

I’m really  hurting right now. This is worse than I’ve been in awhile. I hardly got out of bed yesterday. The only reason I’m up now is because I have to work. I feel so alone. I can’t tell my mom how bad I feel…D’s been a big help, but I feel like I’m worrying him too much. If I could pretend like I was fine and fool him, I would. And I just can’t tell {my other friends}. So yes, I’m lonely.

I don’t know what to do. It’s taking every ounce of strength I have to get out of bed and go to work and to class today. And it’s so hard to talk to people. I just want to stay in my room. And yesterday I finally cried. And cried. I just sobbed. I almost couldn’t stop. And when I finally did, I fell asleep out of exhaustion. I don’t know what to do. (4/8/98)

Fortunately, it was around this time that a friend of mine divulged to me that she struggled with depression and saw a therapist. For whatever reason, that conversation allowed things to finally click for me, and I made an appointment with my doctor, who put me on an antidepressant. It would be this acknowledgement of my illness, more than anything else up to this point, that would help set the course ahead for me.

Living Life with Mental Illness

Maybe it was the fact that it was our family doctor, and not a psychiatrist, that prescribed the medication that helped me start to view my depression as an illness – not as something wrong with me. Don’t get me wrong, I still occasionally get mad at myself because I have mental illness, or think I’m weak or not enough. But I have been armed with the knowledge that those thoughts are simply not accurate. And that has allowed me to come to terms with my illness in a way that I suspect many of the people with whom I interact are not used to seeing. I think it’s for that reason, more than any other, that I’ve been able to become an advocate for others who have mental illness.

Before you get to read or hear from other people talking about my mental illness and me on the blog this month, I just want to say that I appreciate those of you who have been on this journey with me so far, and I look forward to those who will join me in the future. I hope to continue stomping out stigma with all of you for a long time.

Get Committed for Mental Health Awareness Month

We’re both celebrating and educating for Mental Health Awareness Month this May. We’ll be sharing out stories, resources and more this month to let people know what mental illness is all about, while we also celebrate one year of The Committed Project. 

Suedle of The Committed Project founders hugging, dancing, and fighting the Stigma Dragon - Mental Health Awareness Month

Ah, May. Final exams, move-out dates, commencement activities – and quite honestly, a month where our colleagues are mostly stressed-burnt-out-messes. The Committed Project team used to think that this was a tough month for us to highlight mental illness in higher education, but hey, it almost highlights itself this time of the year.

Celebrating Four Years of Mental Health Awareness Month

This will be our fourth year celebrating Mental Health Awareness Month. We will join a coalition of organizations – like Mental Health America, the National Alliance on Mental Illness (NAMI) and more – highlighting statistics, sharing stories and making plans for how to address these issues in our own communities. Full disclosure – it’s blowing our unpredictable minds that we have done this for four years!

Last year, we transitioned from Committed to The Committed Project, as we recognized that we were ready to take on the Stigma Dragon as a stand-alone organization. This year, we have more big plans. We’re sharing one individual’s story with mental illness as told by some of her closest friends, family members and colleagues. That individual is our own Kristen Abell! We will be hearing from the people in her life through blog posts, podcasts and videos. We’re diving deep to capture what it truly looks like to watch someone you love struggle. Think of it as our version of Where’d You Go, Bernadette, except with less art installations and more perceptions of Kristen’s depression and anxiety.

Educating for Mental Health Awareness Month

In addition to this intimate look at mental illness, we will be sharing statistics on our Twitter, Facebook and Instagram accounts. We’ll use these to talk about how much unaddressed mental illness can cost your institution and how successful (or not) higher education has been in addressing these issues for staff and faculty members. We will also be sharing some pieces of our Toolkit AND a new fun (free!) surprise at the beginning of the month through our newsletter. If you haven’t signed up for it yet, do it soon so you don’t miss out!

As always, we will be especially present on our hashtags, #HEdCommits and #SACommits. We’ll also be lurking on the official Mental Health Month backchannel (#MHAM2017), and we encourage you to join us there. We know May is a tough month in higher education. But quite honestly, every month can be tough when you are battling a chronic condition like mental illness. We hope you’ll join us in the conversation and engaging members of your own community during this month and beyond!

About the Author

Sue Caulfield

We Work Best When We Are Whole and Healthy

by Caitlin (CJ) Jones

Each October we celebrate Careers in Students Affairs Month. Countless professionals plan programs and host sessions to spur top leaders into considering the path so many of us chose. Then we move into November, an overall tough month. We are nearing the end of the semester: faculty are preparing for finals, staff are intentionally connecting to those with various post-midterm alerts, undergraduate students are anxiously awaiting a break and second year graduate students are nervously preparing for the upcoming job search. Continue reading

You Are Welcome Here

by Kristen Abell

Over the past few weeks, I have felt a sadness welling in me – not necessarily a depression, but more of an overwhelming fear and frustration with my place in the world as someone who experiences mental illness. Several things contributed to this, but the death of a fierce mental health advocate, Carrie Fisher, has definitely pushed it to the brink. Continue reading